Miles
Miles was born with supra-cardiac total anomalous pulmonary venous return.
Miles was born August 19, 2024, at 38 weeks. I had a normal pregnancy and no red flags at his anatomy scan or his growth scan. My labor with him was quick and easy, but once he was born, we knew instantly something was wrong. There was no cry, and he came out cyanotic and floppy. They originally thought he was having respiratory issues, and he was life-flighted to the children’s hospital a few hours after birth, where they decided to do an echocardiogram and discovered he had supra-cardiac total anomalous pulmonary venous return. I was told this heart defect is commonly found after birth as it is hard to see on ultrasound. He had open-heart surgery at 3 days old to repair his defect. He did well during surgery and his recovery couldn’t have gone any better either. He was discharged home after 2 weeks. We see his cardiologist every few months for checkup echos and EKG’s. His repair still looks good, but now he is in a heart block which we are meeting with a specialist and monitoring. He is now 17 months old, and you would not be able to tell he has a heart defect unless you saw the scar on his chest. We are grateful every day he is here with us. Miles, along with all the other CHD babies, are among some of the bravest souls.
-Miles' mom, January 2026-